4 1/2 months old

Hailey has been through a rough week. She has been very sick. They found out she had pneumonia, and that her heart was working to hard so they gave her a medication to open the blood vessels in her lungs so the blood could pump through her lungs easier. The urine culture came back negative this morning so she does not have a bladder infection. We are hoping that the meds start helping her and that she will be home before May.

4 months 1 week old or 5 weeks Corrected age

The last two weeks have been really hectic and stressful around here. On March 17th Hailey had surgery. She had a G tube put in and a nissen done. A nissen is where they take a flap of muscle off of her spleen and wrap it around the esophagus so she wont have stomach acid or food come up and fill into her lungs. They had to put the g tube in because she can no longer burp or throw up so we feed and burp her through the g tube. After the surgery things took a turn for the worse she didn't handle it very well. She had to be on a ventilator for a few days after the surgery she has been having withdrawls from the pain medication which has been very scary to watch. As she grows the nissen will loosen so she will be able to throw up someday. In order for her to get the g tube out she will have to take all feedings by mouth and be able burp on her own. They will take it out when we haven't used it for 3 months. On Monday we got to start feeding her through the g tube it is pretty easy and once the warm milk goes into her belly she gets a smile on her face. The doctors are going to give her an eco to make sure her heart is doing well. Also they will do an eeg to measure her brain waves to make sure she is detoxing from the pain meds and not having seizures. We might have a neurological consult if the eeg comes back irregular.
Besides dealing with the drama from her surgery she is doing fine. She is getting so big she weighs 8 lbs. 2oz. and she is now on low flow oxygen at 150ml. We hope that the doctors will be telling us soon that we are going to begin the discharge process.
The discarge process consists of 2 stay over nights in a private room so we can get use to the equipment we will have at home with the assistance of the nurses if we have problems or questions other wise we will be on our own. She also has to do a car seat trial to make sure she won't need more oxygen while she is in her car seat. The hospital needs to contact and oxygen, feeding pump and medical supplies companies so we will have everything set up for her when she gets home. The doctors will also schedule our appointments for her first month home. After we have all these things completed we will know her discharge date.

16 weeks Corrected 2 weeks old

Sorry for the update being late I've been working on a project for school. Well we are still waiting for the surgeons to schedule her surgery. We are getting a little frustrated and so are the doctors. We hope that we get word soon and that she will be home around Easter. Hailey is 7lbs 7oz and growing, she is so strong. She loves to listen to classical music and rock in the rocking chair. She is starting to get bored so I took her some toys today hopefully they will work for her.

15 weeks Corrected age 1 week old

Hailey is our little trooper on Friday the doctors decided to give low flow oxygen a try. So far she is doing well we just hope she doesn't get tired and need the high flow back. Hailey is 18 1/2 inches long and 6lbs 5 oz. We are beginning to feed her with a bottle but we are far away from her taking every single feeding from the bottle. In order for her to come home she need to eat 2 oz. every 3 hours for 3 straight days for them to even think of letting her come home.